The Little Black Wire

The little black wire that connects my speech processor to the magnet which sends signals to my cochlear implant has a small tear in its housing. I was warned by the audiologist that many CI wearers are damaging their cables.

The MED-EL kit contains a back-up wire and another one which is much longer (I think). I am going to change out my wire so as not to damage this one any more. Maybe I can find someone who works with electronics who has some kind of glue or something that can fill in the gap.

Anyone else have this problem?

R$ 45,552.81

I got this in the mail today. Glad it’s not a bill. This is just one more reason to be thankful to God in all things. He provides. When I moved to Brazil a decade ago as a missionary, I knew it would be with a humble life-style. I also knew that one day I might need this expensive surgery. In another profession, or even as a pastor in the USA, I probably would have putting aside a little each year for when the time came.

The letter simply asks for an evaluation of the hospital. At the bottom it says:

Total amount paid by SUS for your treatment: R$ 45,552.81

My 100 Day Progress Report

On September 27th 2011, I had a cochlear implant surgery in Juiz de Fora, Brazil. I was implanted with a MED-EL Sonata TI by Dr Evandro Ribeiro de Oliveira. My surgery was paid for through the Brazilian national health system.

I was activated on November 4th 2011. Readers of this blog know that the immediate results, while exciting, were a bit of a let down. For some people, hearing with comprehension is instantaneous. I was not one of those people.

Tomorrow marks 100 days since I was activated.

I’ve hit a few meaningful milestones since that time.

My entire first mapping was a disappointment to me. I was able to hear nothing but a cricket chirping sound for very loud impact sounds, and I heard a humming sound, once. That’s all I got in the first 30 days.

My second mapping was exciting. The power was turned up and I was getting all kinds of sound information. Noise. Mostly the sound of metal banging against metal or coaches whistles. Everything had the same sound. It was also too loud, all the time. However, it was sound. The second 30 days was just meaningless sound.

For my third mapping I tried to be proactive. The clinic does not do a good job of describing the rehab process, what to expect or how implants work. With this frustration, I studied up on the internet and tried to take the lead. This probably led to a third not-as-good-as-it-should-be mapping. In any case, it is the map I have now and it is a 60 day mapping, the next will be for 90 days, I think.

The major development is that I lost my natural hearing in my right ear 21 days ago. I went deaf again. This forced me to rely on whatever I could get from my implant. In these past weeks my comprehension has improved greatly.

• I hear at about 60 decibels.  ‘
• I am starting to understand speech. Not clearly, but consistently.
• I can sometimes understand my son in the dark.
• I can understand parts of familiar recordings.
• My sound environment is getting familiar.
• I can tell if someone opens a door or closes it.
• I can hear if water is running.
• I can hear myself typing, sometimes.
• I can hear footsteps.
• I know when someone is talking, sometimes who.
• I can hear a word here and there on the TV.
• Fewer things sound like banging metal and whistles, now.
• Many things are starting to sound “right”
• I function much better with the implant on, than with it off.

So, 100 days in, I am happy I have the implant. I am not where I want to be with my hearing. Improvement is consistent, and promising. I expect that by 130 days, I will be understanding speech.

(I am filing this report a day early, as I won’t be online tomorrow)

I *Heard* That!

Lipstick

First, an analogy. If the sound of speech were received as handwritten notes, the sound of the speech I hear with the cochlear implant is like a note written in lipstick, rather than a pen. It’s thick, imprecise, and doesn’t fit the style guide of normal speech. Still, you can sometimes get bits of the message.

Conversations

I still rely on lip-reading, but I am finding myself feeling like I need my Cochlear Implant to understand. There is a lot of meaningful information coming in now, and some words… real words, in conversations.

The volume is still way to low for most things, though. Looking forward to getting that bumped up in the next mapping.

Recordings

I plugged the CI directly into my cellphone last night to practice listening. I put on Matthew Chapter 2. “Wha Bla Bla Pa Bla Wha Bla The Voice of one crying in the Wilderness, ‘Prepare th’ Wha Bla Bla Pa Bla Wha Bla”

What was that! I *heard* that! I did hear that!

I was able to get a word or two here and there as I listened. Still not enough for comprehension, but getting there. It is change I notice though. Good change.

Without My Cochlear Implant

When I take my CI off, I can now perceive some sound in my aided ear. If I clap my hands next to my ear, I hear it, faintly. When I scream, I hear myself, faintly. I think my hearing is coming back, a little at a time.

Next audiogram in a month.

Getting Closer to Understanding My Own Voice

I still don’t understand speech. If I am watching subtitles, I can kind of follow along. When I am lip-reading, the sound helps a little, sometimes. If someone is talking but I can’t see their face, there is no chance I will understand.

Last night, however, in the dark, while I was telling my son a bed time story, I could hear my voice and it sounded kind of funny. It was a voice though.

I am surprised, actually, at how these past couple of weeks have been sounding. When I was eleven years old and had gone suddenly deaf, I heard sounds similar to these when my hearing started coming back.

First, my voice was the sound of multiple voices that didn’t really come across very well. That was happening to me last week.

Then, there was a funny sounding voice that reminded me of a man inhaling helium. When I was eleven, I laughed at the sound of my own voice, probably to the point of being annoying to my family. That was the voice I heard my story in last night.

I wonder why it is this way?

The cochlear implant is still much different sounding than that natural hearing, much more garbled and noisy, but there is something about trying to hear speech that brings back memories.

I look forward to hearing again soon.

• Cochlear implant active for 95 days, now.
• Deaf again for 18 days, now.

I *Think* I Hear

Right Ear

I wear my hearing aid in my deafened ear for a few hours each day. When I get alone somewhere, I try screaming as loud as I can and whistling as well. With my cochlear implant off, I concentrate on what I might be registering with my aided ear.

I think I am picking up a very faint sound with the whistling. With my voice, I am not sure if it is me hearing something or just imagining that I am. I should have another hearing test next week. I’ll post the result here.

 

Left Ear

With the cochlear implant, I am noticing changes in the way things sound. I don’t notice them daily, but weekly. Some things are starting to sound “right.” A lot of the abstract sounds are taking their places in the sound environment and I can, at least, find the source of sounds more easily.

My next mapping will be at the end of February, so my volume will be stuck at only hearing things over 60db for a while. The clarity should continue to improve and this will be greatly beneficial.

 

Spiritual Ear

I want to hear what God the LORD says, because he promises peace to his people, to his godly ones. But they must not go back to their stupidity.  Indeed, his salvation is near those who fear him, and his glory will remain in our land.  --Psalm 85:8-9

The other night, I was praying. My prayer was basically this, “Lord, I don’t really care if I never hear another word in this world. I want to hear, but the one I really want to hear is you. Give me strong spiritual ears, so that I can hear your voice and do your will, and live for you.”

Learning How This Thing Works

I had another appointment at the audiologist yesterday. We did an audiogram of settings 3 and 4 on my processor. I am going from memory, but this is about how they look.

X = program 3 and O = program 4

That is a measure of volume. This, evidently changes with mappings, and should improve. Clarity, on the other hand is all in my brain. That comes from me. So I am just waiting for it to get clear.

Yesterday, while watching a one-hour program on TV (Person of Interest), I caught 3 words. Each time, out of the noise, bang! A word I could hear and understand. Hopefully this will happen more and more frequently.

…

Oh, and by the way, to make a cool audiogram like this for free, go to http://www.hearingaidknow.com/audiogram-creator/